" Discrimination experienced by people living with dementia, their families and carers will be the focus of this year’s national Dementia Action Week, 16-22 September. "
Discrimination to be the focus of Dementia Action Week in September

Discrimination experienced by people living with dementia, their families and carers will be the focus of this year’s national Dementia Action Week, 16-22 September.

Dementia Australia CEO, Maree McCabe said the annual national awareness campaign would be centred around a national survey to inform and increase our understanding of the experiences and perspectives around discrimination, and what could be done to bring about positive change.

“Currently, there are more than 447,000 Australians living with dementia, and this number is expected to increase to almost 1.1 million by 2058,” Ms McCabe said.

“Dementia will impact most of us throughout our lives in one way or another, and it is time to bring that conversation to the forefront, and acknowledge the impact dementia has on those living with the disease, their families and carers and across the community.”

For Dementia Action Week, Dementia Australia will recognise and participate in World Alzheimer’s Day on 21 September with activities aimed at raising community-wide awareness and support for people living with dementia.

In addition to the Australia-wide survey, a national event will kick start the conversations, and DIY event kits for community organisations and community minded individuals will be developed.

“The overarching aim of the campaign will be to encourage all Australians to become more aware of dementia, to get a better understanding of what it is like to live with dementia and to learn how we can support people of all ages, living with all forms of dementia, their families and carers,” Ms McCabe said.

“Too many Australians do not know where to turn, and there is a perception in the community that nothing can be done following a diagnosis of dementia.

“It is important for people to understand that with the right support, information and services this can make a life-changing difference to people living with dementia.”

More information about how to get involved will be available shortly. Make sure you’re the first to know by entering your details at https://www.dementia.org.au/dementia-action-week/show-your-support

 Posted: June 12th, 2019
Discussion

Veronica Henricks said:

Totally agree with Jane Brooks’ comments, people with dementia and telephone queues is not a good mix.

Rodger Bull said:

There is significant government discrimination against any couple where one partner has a permanent disability such as dementia. A normal couple without disability can earn $600 pdr fortnight without their pension being affected. In the case of a couple where one has dementia or other permanent disability, and is unable to work, then that couple can earn only $300 per fortnight before BOTH pensions are reduced. My wife has over $7000 in her Centrelink work bonus which nether of us can access. When one adds the cost of aged care into that, we are significantly discriminated against.

Joanne Margaret Allison said:

Contact our local parliament personalities to make a tv and radio ad to engage public to awareness of dementia via dementia daily

Jane Brooks said:

I am concerned about organisations compelling people to do things on-line, and making it almost impossible for people to make phone calls for assistance due to complicated option menus and very long waits on hold. There needs to be recognition that some people, particularly those with dementia, will always need customer service because they cannot cope with a computer and/or cannot afford one. They are being discriminated against.

Nicole Dixon-Mills said:

I live in rural North Queensland and there are 2 x day based therapy centres where I live that people living with dementia attend. As you may or may not be aware:- the Government is pulling out of "Aged Care" and the private sector is moving forward with the "care". Both Blue Care and St John's Community Care both have Centre Based Day Respite Centres in my area. (I know as I used to work in one - as a personal carer / diversional carer). More could be done and will most likely be done as the demand arises. However, there were a number of people with dementia that did not "like" / "enjoy" or was "what they thought" - after attending for one day - who ended up choosing to stay at home and having "in home respite" provided by their Provider.

milton mcarthur said:

what about community based day therapy centres established by country hospitals or local councils using volunteers

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Call the National Dementia Helpline: 1800 100 500