There are a range of forums available that may help with information and put you in touch with others living with dementia. Here are a few that may be of interest:
Alzheimer’s Australia’s Younger Onset Dementia Forum provides a place where younger people with dementia, their families, carers and friends can gather and share information. It provides a place to share your stories, connect with others in a similar situation, ask questions and share information.
Talking Point is Alzheimer’s Society’s (UK) online discussion forum for anyone affected by dementia. It’s a place to ask for advice, share information, join in discussions and feel supported.
My husband has Alzheimer’s and was on Exolon patches for three years. Recently he changed to Aricept oral medication. After three days his speech has improved and he seems more alert. I don’t need to repeat myself and can understand what he is saying. Is this normal?
Hi I"m looking for a forum. This does not look like what i'm looking for. I"m looking for a place where carers can talk directly to each other. As I'm sure dementia sufferers might also like such a place but i will be a carer and i see information from other carers. Do you not provide one?
I recommend ftdSupportForum.com for patients and carers with fronto temporal dementia. It has been running since 2008. I found it only two years after I really needed it. I did not believe strangers from far away could actually help. But there are coping strategies, communication techniques, wisdom and advice from people sharing our road.
Hi Marie, Thank you for contacting us. A good starting point is to call our Dementia Advisors on the National Dementia Helpline on 1800 100 500. They are available from 9am-5pm Monday-Friday. You can also contact them via webchat via this link https://www.fightdementia.org.au/helpline/webchat. I think they would be the best place to start. Good luck. Thank you and all the best, Sarah - The Dementia Daily Team
hello my name Marie, i'm living with my husband John of 53 years married, who is a double amputee with dementia, i'm not travelling very well, i would like to talk to someone else going through the same as me, not just dementia but the two together,