" There are a range of blogs and forums available that can help with information and put you in touch with others living with dementia "
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There are a range of forums available that may help with information and put you in touch with others living with dementia. Here are a few that may be of interest:


Alzheimer’s Australia’s Younger Onset Dementia Forum provides a place where younger people with dementia, their families, carers and friends can gather and share information. It provides a place to share your stories, connect with others in a similar situation, ask questions and share information.

Talking Point is Alzheimer’s Society’s (UK) online discussion forum for anyone affected by dementia. It’s a place to ask for advice, share information, join in discussions and feel supported.


 Posted: October 22nd, 2013

Margaret said:

My husband has Alzheimer’s and was on Exolon patches for three years. Recently he changed to Aricept oral medication. After three days his speech has improved and he seems more alert. I don’t need to repeat myself and can understand what he is saying. Is this normal?

Andrea said:

Hi I"m looking for a forum. This does not look like what i'm looking for. I"m looking for a place where carers can talk directly to each other. As I'm sure dementia sufferers might also like such a place but i will be a carer and i see information from other carers. Do you not provide one?

Glen said:

I recommend ftdSupportForum.com for patients and carers with fronto temporal dementia. It has been running since 2008. I found it only two years after I really needed it. I did not believe strangers from far away could actually help. But there are coping strategies, communication techniques, wisdom and advice from people sharing our road.

Dementia Daily Team said:

Hi Marie, Thank you for contacting us. A good starting point is to call our Dementia Advisors on the National Dementia Helpline on 1800 100 500. They are available from 9am-5pm Monday-Friday. You can also contact them via webchat via this link https://www.fightdementia.org.au/helpline/webchat. I think they would be the best place to start. Good luck. Thank you and all the best, Sarah - The Dementia Daily Team

Marie said:

hello my name Marie, i'm living with my husband John of 53 years married, who is a double amputee with dementia, i'm not travelling very well, i would like to talk to someone else going through the same as me, not just dementia but the two together,

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Call the National Dementia Helpline: 1800 100 500