" The purpose of the NDIS is to provide people with greater choice, individualised support and the flexibility to manage these supports. "
Younger onset dementia and getting the best out of the NDIS

A new short video has been released featuring people living with younger onset dementia and their carers speaking about the positive impact of the National Disability Insurance Scheme (NDIS) on their lives.

The National Disability Insurance Scheme (NDIS) is the new way support will be provided to eligible Australians under the age of 65 with a permanent disability, such as younger onset dementia.

The purpose of the NDIS is to provide people with greater choice, individualised support and the flexibility to manage these supports. It began in a number of trial sites around Australia from July 2013 where younger onset dementia key workers supported their clients in navigating the scheme.

As of 1 July 2016, the NDIS was formally launched and is currently being introduced in stages across Australia. It will roll-out incrementally over three years to ensure it is successful and sustainable. Delivered by the National Disability Insurance Agency (NDIA), the NDIS is expected to be be fully operational by July 2018. All existing supports will remain in place until the NDIS is available in your area.

The Alzheimer’s Australia Younger Onset Dementia Key Worker Program can help people to prepare for the NDIS.

Any new system can seem difficult to navigate at first. Younger onset dementia key workers are ideally placed to support people with younger onset dementia in this regard, as the program has been interacting with the NDIS since it was first trialled.

This support can include:

providing you with information about the NDIS and how it will affect you

offering guidance and support to obtain and complete your NDIS Access Request Form

helping and supporting you and your family or carer as you prepare for meetings with an NDIS planner, by working with you to identify your existing needs and supports

offering guidance and support to help you identify potential needs and supports for the next 12 months, in order to address these with your NDIS Planner

liaising with your NDIS Planner following your planning meeting.

You can view the video by clicking here.

For more information about the NDIS process, view the younger onset dementia and NDIS toolkit by clicking here.

For more information on how to access the Younger Onset Key Worker Program, click here.

And to find out more about younger onset dementia, click here.

You can also visit the NDIS website www.ndis.gov.au or call the NDIA on 1800 800 110 from 8am to 11pm, Monday to Friday.

 Posted: October 4th, 2017
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Call the National Dementia Helpline: 1800 100 500